IrSPEN National Survey of Patients on Nutrition Support at home in Ireland
Are you a patient or carer of someone receiving either home parenteral or enteral (tube feeding) nutrition living in Ireland?
If so, we want to hear from you.
Who we are:
The Irish Society for Clinical Nutrition and Metabolism (IrSPEN) is a non-profit, voluntary organisation of doctors, dietitians, nurses and other healthcare professionals dedicated to improving nutritional care of patients in Ireland.
Have Your Say
If you are a patient on nutrition support at home, or care for someone that is, please take just 5 minutes to complete our short survey, designed to find out more about the support needs of home nutrition patients around the country.
Why we ask
As many IrSPEN members are healthcare professionals who are involved with patients with complex nutritional needs, we want to know how we can help improve the support and information available to patients on long term enteral or parenteral nutrition at home.
Patient Support Meeting – Spring 2020
(due to Covid-19 this meeting is extended to Winter 2020)
In the UK, an organisation called Patients on Intravenous and Nasogastric Therapy (PINNT) provides support and an online forum for patients on home feeding, but in Ireland, no such patient organisation currently exists. With this in mind, IrSPEN, in conjunction with PINNT, is planning to organise a meeting for patients and carers in a central location in Dublin in late spring, where there will be an opportunity to hear from invited speakers on relevant topics and share experiences. Your responses to the survey will help us tailor the programme to meet expectations, while giving us a better idea of the support needs of patients around the country and the interest in having other events and support days.
How to complete the survey
To request a paper version of the survey please contact your home nutrition provider. At the end of the survey, you will be given the option of providing IrSPEN with your contact details so that we can send you further information and joining details for the Spring patient meeting. Your personal information will remain separate from the results of the survey to maintain anonymity and will not be used other than for the purposes stated.
